The NCRI Confederation of Cancer Biobanks held a successful workshop on Ethics and Governance in Cancer Biobanking at the Thistle Hotel in Marble Arch, London. This was a pre-meeting of the Winter Meeting of the Pathological Society and was organised and hosted by onCore UK in association with the National Cancer Research Institute, Confederation of Cancer Biobanks, Pathological Society and Experimental Cancer Medicine Centres.

Click here to view the workshop programme

Click here to view the workshop report

Please click on the following presentation titles to view the speaker’s slides.
Links are also provided to the websites of the organisations represented by each speaker.

Introduction	Derek Stewart OBE, Chair, NCRI Confederation of Cancer Biobanks
CCB Guiding Principles – a cornerstone for good biobank governance	Dr Brian Clark, onCore UK
Generic and enduring consent – the essential elements	Dr Alison Parry-Jones, Wales Cancer Bank
Information governance requirements to protect donor confidentiality (Slides unavailable)	Harry Cayton OBE, Chair, National Information Governance Board for Health and Social Care
Linkage of Clinical Information to annotate samples	Chris Carrigan, National Cancer Intelligence Network
Regulation of Human Research Biobanks – a Q&A Session	Adrian McNeil, Chief Executive, Human Tissue Authority
An example of fair access in principle and practice	Dr Martin Yuille, UK DNA Banking Network
Ethical review of biobanks - policy and procedure	David Neal, National Research Ethics Service
Tissue banks and R&D review: IRAS, CSP, TCCs and other acronyms	Dr Janet Messer, NHS R&D Forum
Governance models and benefit sharing	Professor Graeme Laurie, University of Edinburgh
Harnessing stakeholder engagement and support	Derek Stewart OBE, Chair, NCRI Confederation of Cancer Biobanks